Systemic lupus erythematosus (SLE) is a chronic and
heterogeneous autoimmune disease. Twin studies indicate a strong genetic
contribution to lupus, but in the majority of cases the pathogenic variant
remains unknown. The genetic contribution to disease is likely to be greatest
in cases with early-onset and severe phenotypes. Whole exome sequencing (WES) now
offers the possibility of identifying rare alleles responsible for disease in
such cases. We performed WES in a 4-year-old female with early-onset cerebral SLE
and conducted biochemical analysis of the putative defect. WES identified a
rare, homozygous mutation in the Three Prime Repair Exonuclease 1 (TREX1) that
was predicted to be highly deleterious. The TREX1 R97H mutant protein had a
20-fold reduction in exonuclease activity and was associated with an elevated
IFN-a signature in the patient. The
discovery and characterization of a pathogenic TREX1 in our proband has
therapeutic implications: the patient is now a candidate for neutralizing
anti-IFN-a therapy. Our study is the
first to demonstrate that WES can be used to identify rare or novel deleterious
variants as genetic causes of SLE and, through a personalized approach, improve
therapeutic options.